sunflowery's Diaryland Diary


Superhusband is mortal afterall

Happy birthday Bryan...where ever and however you are. Card is in the mail.

Today...highs in the 60's! Last time we hit 60 degrees was 5 months ago today! October 24th. Can you believe that? Man, we need to move to Florida! It's supposed to be 60 through the weekend...I think I have to clean off all the patio furniture and the grill so we can enjoy the weather. We may even have to break out the cat leashes and harnesses! Kitty heaven. Plus, then we can meet all the new kids who have moved into the building since winter hit.

Also in the forecast for tomorrow? THUNDERSTORMS! Yee Haw! I love a good thunderstorm.

Yesterday was another doctor extravaganza for Supe. We went to our family doctor. First, I got to show her my almost wart-free foot! Then, I asked about why I'm itching and we determined that Supe and I should switch laundry products and see what happens, otherwise, if that doesn't help, I will have to under a battery of allergy tests to see what could be causing the irritated skin.

Supe had his appointment and apparently his hemoglobbin level was over 20. (A normal person's range is usually 13-15.) That is what freaked the doc out on Friday. Also, they did a chest X-ray and he has a small amount of fluid in his lungs and is retaining water in his extremeties. They think it's because he hasn't been sleeping with the bi-pap. He is retaining more carbon dioxide than he is expelling when he sleeps, so it throws everything out of whack.

He is going to see our family doc again next week and may have to see his pulminologist. They sent his chest x-rays to a radiologist to see how serious the fluid build up is. And they sent the medical supply company to our home yesterday to determine if his equipment is working properly. (It is.)

So last night he slept all night on the bi-pap, but he said when he woke up this morning, he was dizzy and he was having muscle spasms in his arms. Not sure what that's about. But he has been using the gelled water in his eyes and he said that they feel tons better. The only downside to that is that is the only perscription NOT covered by our insurance, so the tubes cost $50.00 a pop! I need to call the pharmacy to see if there is a generic equivilent.

Supe's health worries me. He's amazing and wonderful, but lately he just seems so fragile. It's scary for me. I just found him...I am not ready to lose him.

I am mailing off the rest of the paperwork needed in applying for the grant for the van. Everything is together now, so once they have the paperwork, I am hoping to hear a timeline, or something about when we might know if we qualify. There are 18 people on the waiting list...waiting for a total of $176,500 in grants. So, it still could be a while.

There is a lot I want to write about Supe and me and our health and our future, but most of it is negative and much of it is still rolling around in my head, being processed. I don't know how productive it would be to put it down and get it "out there" right now.

In the meantime...who watches Average Joe and American Idol? Can I just say, Adam is the bomb? Turning away 5 gorgeous bathing suit models because he was concerned for the feelings of the girls he already had on hand? Classic. What a gentleman. LOVE HIM!

Last night on AI...I was blown away by Amy Adams! I have been hard on her, but she was amazing last night. Also, still loving Diana DeGarmo and Fantasia. And that cute little leprican boy with the red hair? How awesome was he last night? So cute! This is the best season yet.

Tell me your favorite reality show, AI contestant or why you hate reality shows. Leave a comment.

------------------------------------ About A Year Ago Today: March 23, 2003: "R" is for Rebound and Rejoice

Today's entry is brought to you by the letter "R" for Rebound and Rejoice!

I want to state clearly and unequivocally that Sweet Baboo and I are both believers in the Most High God. The way we think, live, and believe are not of this world but of the next. We are asking God to mold us into His image and therefore to live by His Word.

Is anything too hard for our God? Is not His name above EVERY name? Even the name of Muscular Dystrophy? Did He bring us this far to just let us fall? Most certainly not! We may be in the midst of a storm, but He is our ROCK and FOUNDATION. We do not look at the winds and waves howling and pounding around us, but to the God who has the power to quell the storm. We are seeking His face and hiding in Him.

Now, we may be given a diagnosis of one this or another...but do we have to receive that? No we do not. Man sees in the natural...God sees in the supernatural. Nothing is impossible with Him...but without Him we can't do anything!

Matthew 18:18"I tell you the truth, whatever you bind on earth will be bound in heaven, and whatever you loose on earth will be loosed in heaven. 19"Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in heaven. 20For where two or three come together in my name, there am I with them."

Sweet Baboo and I are agreeing in prayer for his healing. Is this too hard for God. By no means! Will you stand with us in prayer, agreeing with us for SB's complete and total healing? For new muscle tissue to be regenerated. For strength and energy and LIFE!

Are we praying this for ourselves...maybe a little. But more so that the world can see how great and glorious our God is. He gets the victory. That people may be drawn to the King of kings and may desire a relationship with the living God of the universe who loves them with abandon.

Our strength lies, not in ourselves, but in the power and authority of the Lord. He is our source. He is our strength, our comfort, our all in all. How could we live without Him?

We believe we are called to a higher purpose than to lay down and roll over and accept what the doctors are telling us about Bob. Yes, there are medical explanations and diagnosises. But again, is not God bigger than man's knowledge and medicine? Yes He is. So, we will listen and we will pray. But we will NOT received anything but health and life. We speak LIFE over Bob's body. LIFE over his muscles. LIFE over his lungs and heart. LIFE over his mind.

We claim the WORD of God which TRANSFORMS...Romans 12:2

Do not conform any longer to the pattern of this world, but be transformed by the renewing of your mind. Then you will be able to test and approve what God's will is-His good, pleasing and perfect will.

How do we renew our mind? This world bombards us with It's truth and reality. But GOD'S WORD is what is TRUE. We must read His word in order to really live and in order to transform our minds. What God says is true. He cannot lie. He is the same yesterday, today, forever. He transcends time. The same Jesus who healed all who came to Him is the same Jesus today. He still heals. He still performs miracles. We believe it. We know it. We claim it.

Glory to GOD in the highest. He is a kind and caring Father, who guides us in every move we make.

Pray for Sweet Baboo, but praise God who made him and brought his this far. SB is an overcomer and is a man who follows the way of the Lord.

Thank you for your prayers. Praise God for His design of the Body of Christ. We feel your prayers and support and love.

God bless each and every one of you richly

Thanks for reading! More From About A Year Ago: March 23, 2003 "S" is for Suddenlies and Savior

Today's Entry is brought to you by the letter "S" for Suddenlies!

First of all, I need to, but can hardly, express my thanks and gratitude to you all for your prayers and for putting Sweet Baboo on your church's prayer lists. We feel those prayers and are buoyed by the encouragement and love.

Secondly, SB is doing MUCH better. When I got to the hospital today, he was off the bipap machine. His blood gas levels had improved so much over night that they now only make him wear the bipap 3 times a day for an hour each time and at night when he sleeps. Also, last night he had the first full night's sleep he's had in months. In fact, I can't remember the last time he slept through the night! The pulmonologist came in this morning and told him he was wrong...that he probably won't need a ventilator because he's improving so steadily. He said SB may have to weaar a bipap at night when he sleeps and maybe take some oxygen through out the day...but they don't know yet.

SB's new nuerologist came in and explained that he does have the FSH MD he was diagnosed with last year, but that should NOT affect his lungs of the muscles around them at all. But he did say that SB could have a renegade form of the FSH that just manifests differently in his body. They are going to do a bunch of tests tomorrow and we should know more after that.

Sweet Baboo was in such good spirits today. He had a steady stream of visitors all day and that kind of wore him out, but he was happy to see everyone. He is so loved! Thanks for coming to encourage my husband!

A tech came in this evening to take some blood from him and we realized he was the same tech that took blood from him when he was on the 4th floor. We were listening to Mercy Me and the tech asked us if we were listening to KTIS (the local Christian radio station.) I said no, but they played that song on KTIS. The tech said he loved Mercy Me and was a believer in Christ. He and SB had a wonderful moment of connecting and when the tech left, SB said, "If I don't see you again, I will see you on the other side." Then the tech said, "You bet! I will see you in Glory some day." It was such a God moment. I can hardly explain it to do it justice...just a very encouraging encounter.

Here are some things to pray for:

1.) SB's roommate from the 4th floor, Lee was discharged today. He is an elderly man with liver cancer. He is also a believer. SB prayed with him during the one night they were in the room together. Please pray for his complete and total healing. He really encouraged SB and I.

2.) Please pray for Suzanne and her family. Their 80 year old mother is in the ICU with Lymphoma and Pnuemonia. The doctors told her that she is fighting the ventilator she is on and that she has a leak in her lungs that gets bigger as she fights. They were recommending the family pull her off the ventilator and let her go. Suzanne and her sisters have been on the ICU 24/7 since we've been there. Tonight many, many people came to say goodbye. Please pray for their comfort and care. They are from...Liberia Africa...I think.

3.) SB's eyes are super red and irritated from the blowing oxygen and his nose and skin are all dried out. He is on antibiotics, so infection is not an issue right now. But please pray for his eyes to get better. He does have some drops, so we hope that makes him feel better.

4.) Please pray for the doctors as they run the tests tomorrow. Pray for their wisdom and for them to be led to the right answers. But as SB told his pulmonologist today, he is there only to prove them wrong.:-)

5.) Finally, pray for Sweet Baboo to be totally and completely healed. We put our faith in God and His Word and His Word says by Jesus' stripes we ARE healed. Pray that his body submts to God's Word and that his healing is manifested in the natural.

...oh! I am having my gallbladder taken out tomorrow (monday) at 8am Central time. Please pray that it is an easy in and out thing and that I can be home recouping so I can see SB on Wednesday.

Thanks again for praying! We love you so much and are praying for you and your family too!

9:29 a.m. - Wednesday, Mar. 24, 2004


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